Our mission is to help those with neuroendocrine tumors and carcinoid to share challenges and experiences, learn about prognosis and treatments, find information, and improve communications between the medical community, patients and caregivers. By providing opportunities for our members to connect with others who have these rare illnesses we will enable them not only to get their questions answered but also to give and receive emotional support. In addition, we aspire to bring greater awareness to the medical community and the public so as to promote earlier detection and treatment of these often unrecognized illnesses.
NorCal CarciNET Community is now a 501(c)(3) (Tax-Id 45-2968919)
Contribution made to our group are now tax deductible.
The Pignati Family who are members of our NorCal CarciNet Community, are hosting a fundraiser on August 3, 2014 to raise money for the Caring for Carcinoid Foundation (CFCF). CFCF is one of the largest provider of research funding for NETs. The Bike/Run/Walk will be held at Palo Alto's Gunn High School. For more information please check their website.
NorCal CarciNet Community President, Josh Mailman was featured in the Society of Nuclear Medicine and Molecular Imaging's Clinical Trials Pathways Newsletter in January, 2014. Josh's article "68Ga PET/CT Advances in the United States: A Personal Journey" chronicles the work that Josh did with the Gallium 68 working group to bring Ga68 imaging to the United States. To download a copy of Pathways click here.
If you have health insurance, you have entered into a legal contract with your insurer. You make your payments and they should do everything written in the "contract". While it works well most of the time there are times you will receive a denial for a service or treatment. Don't give up – now you have to prove to your insurance company where in their contract it calls for the service or treatment you are requesting. First things first - you need your contract. Not everyone who has "XYZ" insurance has the same contract.
Many members of the NorCal CarciNET Support Group donate their time and energy to produce informational material for patient and caregivers living with Neuroendocrine Tumors.